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tomato.3141 tomato.3141
wrote...
Posts: 46
Rep: 1 0
12 years ago
If you think you have seen this question before, you probably have.
first time, for some reason it went in the wrong category, and I didn't notice it. Second time, people thought I had diagnosed myself. So basically I wasn't getting answers.
(I am 23 years old)

I did not diagnose myself, I have had blood work several times. Two doctors, and once in the ER after I had gone there for severe joint pain. All three doctors gave me these results. B12 deficiency, Vitamin D deficiency, as well as Low Iron.
I have been taking B12 shots for a month and a half, and my recent blood work shows I need to continue taking the shots once a week for right now. (for the next four weeks) Then more blood work to check the levels.
My vitamin D was said to be low. Currently taking 2,000 i.u a day. And I am taking Slow-Fe for my Iron. I also take centrum as my multi-vitamin
Blood work also checked my Thyroids, Arthritis, Lime, Diabetes, Glycemia, Celiac, Gluten
My symptoms:
joint pain (everywhere). hair shedding. muscle tightness. numbness/tingling in hands and feet. cold hands and feet. dizziness. fatigue. low energy levels. eye and inner ear twitching. pale skin. frequently getting sick. nausea. headaches. inability to focus. easy bruising. and two other symptoms. having a hard time sleeping/staying asleep, and drastic weight changes (10-15lbs a month!)



NOW FOR MY QUESTION:
Will this get rid of these symptoms I have been dealing with for the last 2 years?
My doctors want me to follow up with a Neurologist, and a Rheumatologist. Should I be concerned with anything else?
My friend told me to look into fibromyalgia, and lupus. How do I get checked for that?
I have seen two internal med doctors.
And I'm sorry, reasons you believe I should see a endocrinologist?
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wrote...
12 years ago
B-12 deficiency can occasionally cause everything you have listed.  Hashimoto's Disease has also presented this way. The B-12 deficiency may improve with continued injections.   Also, I would supplement your Vitamin C, but only when you are eating  food as well. I think you may also need more D3 than you are getting.
     I agree that Lupus needs to be ruled out.  An ANA (anti-nuclear antibody test) is a simple bloodtest and is helpful in furthur working these symptoms up.
      I would like you to see a board certified endocrinologist and a board certified internist. An endocrinologist would be of value, because many laboratory tests can only be interpreted with skill by endocrinologists. In addition, there are autoimmune multiglandular syndromes which may have unusual presentations, particularly in an otherwise well young person.
Unless there is anything else in your labs, I would see these before a neurologist or rheumatologist.
Sometimes an accurate diagnosis can take a while.  Very best wishes.
wrote...
12 years ago
Whats your hgb and hct levels in you last three CBC?
wrote...
12 years ago
the deficiences could explain all your symptoms..yu need to try to figure out why you have so many...

many docs will diagnose you with Fibromyalgia becuase they use it a a general label for pain..that is wrong

you can't get a good eval for FMS until all your deficiencies are addressed...but i am doubt ful it is FMS at all

look up Lyme Literate MD..

with th bruising i would consul a hematologist--
i would dfinately want to consult a specialist


endocrine issues
http://en.wikipedia.org/wiki/Endocrine_diseases
wrote...
12 years ago
I agree with the physician that you have vitamin b12 deficiency- I have battled with that myself. I personally don't like the idea of taking those painful b12 injections for the rest of my life, and I have found that the tablets which dissolve under the tongue are not all that effective, as many of my symptoms returned.

I have begun using a b12 patch, and so far I seem to have more energy.

Good luck!

Linda Socher
wrote...
12 years ago
It seems there are some educated people on this thread, but they didn't mention the cutting edge research in celiac disease that I'm going to mention.

1. The blood panel for celiac disease is highly prone to false negatives. Even if this test (actually a group of tests) says negative, you could still have celiac disease or gluten intolerance which, at this point, appear to be different. The test is only about 50% accurate. But this blood test is more accurate than the intestinal biopsy. Intestinal damage only presents itself after many years of gluten exposure. I.e. damage appears only late in the game.

2. You have many of the same symptoms I had. So I take 8333% of B12 every morning, and 4000IU of Vit D every morning.

3. You need to go to an allergist that has had training in food allergies. Only last year did my allergist (who I am seeing for typical allergies like grass and mold) get trained in food allergies. Most allergists do not know the difference between a skin test and blood test. You need the more sensitive blood test to find a wheat, corn, or other allergy. You should be tested for the top 10 food allergies, and wheat and corn are both in the top 10.

4. Don't let an egotistic dr scare you, they don't know everything. Most of them are completely ignorant of food allergies, especially the older ones. Many of the older family doctors believe it's an imaginary illness all in your head, and will send you to a psychologist.

5. Fibromyalgia may be real, but we don't really know what causes it. So doctors dismiss it. Just like they used to dismiss AIDS and mental illness.

You can view more studies at this free forum: http://www.celiac.com
Another good free forum with recipes: http://forums.glutenfree.com/
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